Having a child with torticollis can be stressful, especially if it is something that is noticed soon after your baby is born. Torticollis can result from a few factors such as how the baby was delivered, how they were positioned in the womb, or how a baby is positioned after birth. The great thing is that if it is identified early, treatment is more effective sooner and correction is generally quicker. The difficult thing with torticollis is when it goes untreated and your baby is more independent and crawling or walking all over the place--- treatment is more difficult and progress is slower to correct the muscle imbalances related to torticollis. But in either case, there are effective treatment options, we just have to figure out the next step!
If your child has been diagnosed with the condition of torticollis by their pediatrician, you probably already have an exercise sheet showing you how to stretch your child in at least two different ways. One is a side bend and the other is a head rotation. These stretches are great to be aware of but they need to be done correctly and throughout the day to make any sort of lasting change. If you have noticed that your child is not improving after one or two weeks of these stretches and your baby's head tilt or head rotation is getting worse, it's a good idea to contact your pediatrician for more assistance.
Depending on your location and what services are available, you may be referred to go see a physical therapist (PT) or an occupational therapist (OT). PTs and OTs are specialized to treat torticollis and depending on the practitioner's style of treating, have the ability to make the experience enjoyable so that your baby is relaxed and actually getting a good stretch and is able to strengthen the correct muscles. It take skill to be able to get a baby calm, engaged, and have targeted activities to make actual changes in their overall flexibility and strength.
If you are unsure if your child needs therapy, check out the following. If one or more of the following are true for your baby, who is over one month old, it is highly recommended you have a discussion with your pediatrician regarding torticollis and treatment concerns so you can be referred to get professional assistance for your little one:
(depending on your state, you may be able to schedule directly with a PT or OT without a physician referral)
- I have tried the stretches but my baby cries the whole time and resists the stretches
- My baby's whole body looks crooked when I lay them down
- It is difficult to cleanse or dress my baby because of how they position their head close to their shoulder to one side
- My baby is moving one hand a lot more than their other hand
- My baby keeps one hand closed and fisted while the other hand opens and explores more
- My baby kicks one leg more than their other leg
- My baby only moves their eyes to follow me to one side but moves their head to follow me to the other side
- My baby only rolls one direction
- My baby uses one hand to play with toys
- My baby has a hard time breastfeeding on one side compared to the other side
- My baby always moves to one side after I correct their position when they're in their car seat or when I lay them down to sleep
If your baby is tolerating the stretches and you see improvement in how they're positioning their head and don't see any issues above, continue to monitor how your baby is doing until the next pediatrician appointment. If you don't have an upcoming appointment scheduled, maybe schedule one 4 weeks after your pediatrician informed you about your child having torticollis so they can reassess.
If you are a concerned parent who's child has not been assessed for torticollis by their pediatrician and you're seeing signs of torticollis, call your pediatrician (or in areas of direct access you can contact a PT or an OT) and have them asses your child. In my experience, children who are seen for the treatment of torticollis at 0-3 months of age have overall better prognoses than children referred after 6 months of age. Management of torticollis is A LOT easier to manage sooner than later, especially for baby and parents.
I hope this has been helpful. If you have questions let me know!